Butterfly Skin Awareness Week Begins Today
Debra Ireland have today launched a campaign to support families across Cork affected by Epidermolysis bullose.
Baby Alana Reid-Sochan from Knockraha suffers from the rare and painful skin condition known as EB or butterfly skin, which leaves most of her body covered in open wounds.
Alana is one of only 300 people across Ireland who suffer from the genetic condition.
Debra Ireland provides support for EB patients and their families and National EB Awareness Week is running from today until the 29th of October.
Speaking to RedFM News Debra Ireland's Judith Gilsenan says the funds will go towards research programmes to find better treatments and possible cures for EB.
Debra Ireland Butterfly Tattoo's are availble at any Applegreen service station or listenters can txt the word BUTTERFLY to 50300 to make a €4 donation.
More from Cork
-
Lord Mayor Of City Felt Privileged To Represent Cork During Such A Difficult Time As He Faces Into Last Month In Office
Councillor Joe Kavanagh will be handing over the mayoral chains outside of City Hall for the first time ever on June 18th due to the pandemic
-
Expert calls for people to reduce meat intake
Eating too much meat can increase the risk of serious illnesses by as much as 30%.
-
International Care Day Is Being Celebrated At The Bessborough Centre In Blackrock Today
The event highlights the positive impact of the experience of young people in care
-
UPDATE: Teenage Girl Killed And Three Teenage Boys Injured In Knocknaheeny Crash
It's understood the teenage driver of the car fled the scene on foot
-
Angry Farmers To Stage Protest Outside Aldi in Mitchelstown Later
They're appealing to retailers to come to the talks table
-
UPDATE: Toddler Who Was Injured At Her Home On The Boreenmanna Road Has Died
The two year-old was rushed to hospital with traumatic head injuries
Comments
Add a comment