Consultant Geneticist: Ireland’s Lack Of Patient Data Causes State To Over-Pay When Buying Medication
Consultant geneticist Dr Sally Ann Lynch told the Oireachtas Health Committee that the Health Service does not collect proper information on rare diseases
Dr Lynch says this ends up costing the taxpayer in the long run:
"About five or six years ago, a new Cystic Fibrosis drug came on the market; and at the time the Irish government bought it saying 5% of the Irish population had this specific mutation, that would allow them to be treated. The Irish government thought it was 5%; they based it on UK data, but actually 15% of the Irish population carried up mutation. So, we would have got a cheaper rate if we had our data, so that goes back to registries."
More from Cork
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Lord Mayor Of City Felt Privileged To Represent Cork During Such A Difficult Time As He Faces Into Last Month In Office
Councillor Joe Kavanagh will be handing over the mayoral chains outside of City Hall for the first time ever on June 18th due to the pandemic
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Expert calls for people to reduce meat intake
Eating too much meat can increase the risk of serious illnesses by as much as 30%.
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International Care Day Is Being Celebrated At The Bessborough Centre In Blackrock Today
The event highlights the positive impact of the experience of young people in care
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UPDATE: Teenage Girl Killed And Three Teenage Boys Injured In Knocknaheeny Crash
It's understood the teenage driver of the car fled the scene on foot
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Angry Farmers To Stage Protest Outside Aldi in Mitchelstown Later
They're appealing to retailers to come to the talks table
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UPDATE: Toddler Who Was Injured At Her Home On The Boreenmanna Road Has Died
The two year-old was rushed to hospital with traumatic head injuries