Cork woman speaks out to RedFM News about daughter's rare genetic condition
Cork woman Eleanor O'Kelly Lynch has spoken out to RedFM News about her devastation after her daughter was diagnosed with a rare genetic condition.
25-year-old Lauren was born with Cornelia De Lange Syndrome - a condition affecting only 24 people in Ireland.
This year Eleanor is heading-up the first ever awareness campaign for CDLS in Ireland.
Our senior reporter Fiona O'Donovan has this special report for RedFM News:
If you would like to donate you can text FRIEND to 50300 to donate €4. CDLS will get a minimum of €3.25 from each donation.
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