Health Minister under pressure to make drug available to all CF patients
Pressure is mounting on the Health Minister to make the life changing drug Orkambi available to all cystic fibrosis sufferers.
Kara O'Callaghan whose son Leon has CF, was speaking as pressure is mounting on the Health Minister to make the drug Orkambi available to all cystic fibrosis sufferers...
Talks between the HSE and pharmaceutical company Vertex on the cost of Orkambi are ongoing with activists to hold another demonstration on the matter outside the Dail tomorrow...
Vertex had initially sought €159,000 per patient per year for Orkambi but this is understood to have been significantly reduced.
Speaking to RedFM News Kara says she believes Orkambi could allow her son to lead a normal life
More from Cork
-
Lord Mayor Of City Felt Privileged To Represent Cork During Such A Difficult Time As He Faces Into Last Month In Office
Councillor Joe Kavanagh will be handing over the mayoral chains outside of City Hall for the first time ever on June 18th due to the pandemic
-
Expert calls for people to reduce meat intake
Eating too much meat can increase the risk of serious illnesses by as much as 30%.
-
International Care Day Is Being Celebrated At The Bessborough Centre In Blackrock Today
The event highlights the positive impact of the experience of young people in care
-
UPDATE: Teenage Girl Killed And Three Teenage Boys Injured In Knocknaheeny Crash
It's understood the teenage driver of the car fled the scene on foot
-
Angry Farmers To Stage Protest Outside Aldi in Mitchelstown Later
They're appealing to retailers to come to the talks table
-
UPDATE: Toddler Who Was Injured At Her Home On The Boreenmanna Road Has Died
The two year-old was rushed to hospital with traumatic head injuries